Thirteen participants and five researchers attended the EPIC Participant Advisory Panel meeting at the Assembly House, Norwich.
Matters arising from previous minutes
Plans are being made to send out a follow up 6 health and lifestyle questionnaire along with DietWebQ and Food Frequency Questionnaires and the preliminary layout is going ahead ready for Ethics approval.
The application for the use of tissue samples in EPIC has now been approved, supported by the comments and feedback from EPAP members.
Professor Kay-Tee Khaw talked to the Panel about an approach made to the EPIC study by a research group (part of Dementia Platform UK) who would like to collaborate on research with EPIC participants. The study would be looking at risk factors for dementia.
The EPAP members were generally very supportive of research into dementia. They expressed their opinions and reservations regarding the proposal which will be passed on to the research group.
‘Four mountains’ cognition task
The Panel were shown a demonstration and explanation of the ‘Four Mountains’ cognition task. This is a test used to assess the ability of people to recognize places in situations where the viewpoint and surface features change. EPAP provided feedback on this test and whether it should be considered for inclusion in EPIC.
The Panel looked and tried on wrist actigraph monitors to comment on acceptability and ease of use. The monitors are intended to be worn for seven days, including in bed, when doing physical activity and in the shower/bath.
Talks suggested for future meetings were:
- Dementia and its definitions
- Progress within EPIC Europe
- A speaker from an ethics committee