We welcome proposals for projects and aim to make data and samples as widely available as possible whilst safeguarding the privacy of our participants, protecting confidential data and maintaining the reputations of our studies and participants.

Data requests

Data request form

Data from the EPIC-Norfolk study can be requested by completing a data request on StudiCat, the IMS Epidemiology data dictionary and data request system. StudiCat is currently in a beta testing phase, please contact the study team if you have any feedback or problems.

Complete the form using data dictionary

StudiCat provides information about the variables available in the EPIC-Norfolk study. As part of the data request you can add variables or variable groups to the basket for your request. We ask that you only request the variables you are certain you need for your analysis; additional variables can be added to the data set after access has been provided. Large data sets take longer to prepare and may delay access to the data.

You can contact the study team for further advice if needed. The old data dictionary is currently still available but all requests must now go through StudiCat.

Additional data request form

If additional data is required following the approval of a request, this can be requested using the additional data request form.

Data access and costs

Information on how the data can be accessed and the associated costs can be found on the Data access & costs page.

Sample requests

To request samples please complete the sample request form.

Requestors will need to cover costs of sample retrieval, and re-arraying if relevant to the request. Please contact us if you need more information.

Submitting requests

Data requests should be submitted through StudiCat. Completed data or sample request forms and any additional data request forms should be emailed to the study team.

Approval process

All requests for access to EPIC-Norfolk data or samples are subject to review and approval by the EPIC-Norfolk Management Committee.

The committee meet monthly; contact the study team to find out when the next meeting is scheduled.

Following approval, researchers must complete the relevant agreements and where applicable, secure research environment onboarding requirements before access can be provided.

Approval of sample requests is also subject to the availability of suitable samples and consideration of the amount requested from the remaining limited and valuable resource.

Terms of data and sample sharing

We are committed to the principles of high quality research that generate reliable results about the causes of and treatment of disease. All data and sample sharing must meet the terms of existing participants’ consent and study ethical approvals. Our Data Access and Sharing Policy (pdf) defines the principles and processes for accessing and sharing our data.

Researchers granted access are required to comply with the applicable agreements and conditions of access, including requirements relating to data security, confidentiality, and outputs.

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